One treatment and on hold again!

We quickly got things set up for treatment here in town, but the rush did create some issues that we’re still trying to get organized regarding prescriptions, lab work and other follow-up test scheduling. Fortunately, I am a well-informed patient and have been able to stay on top of everything that needs to be put in place from various locations. I think we’re close to having all my lab work that has to be done at various times organized so that I can maximize each blood draw. I’ve had quite a few draws this past week, plus two IV needles yesterday. I heal so slowly due to my cancer that you can see the marks from the needles for many days afterward, and I have to be diligent that the location doesn’t bruise.

I had my first treatment yesterday (Monday) and was supposed to have my port inserted today so treatment with a much more toxic chemo drug could be administered on Thursday. However, by evening yesterday I had a terrible headache and as the evening progressed, shaking chills, severe aching in my body and fever of 101.7 became unbearable by 4:00 am. At 5:00 am I was supposed to suspend eating or drinking anything to be prepared for my procedure today. I hadn’t taken any aspirin, tylenol, etc., as I was told not to take anything like that prior to my procedure. At 4:00 am I had to call the doctor for advice. She told me to go ahead and take some tylenol and cancel my procedure. I knew that it was critical that I stay hydrated with a fever, and she agreed it was very important. Other than a little intestinal upset this morning, I am fortunate that I have not had any nausea to deal with; although, anti-nausea medication was administered through the IV prior to receiving my chemo drug.

When I spoke with my doctor early this morning, she was hopeful that it was just a reaction to the chemo and if it was, it should resolve within 24 hours. To be on the safe side, she ordered blood cultures to be done and started me on antibiotics. My fever has come back up this afternoon, but not quite as high as last night.

So, treatment is on hold again. I have to get over what ever ails me before they insert the port and I can have anymore chemo. She did tell me that due to my low blood counts and almost non-existent immunoglobulin levels, it was going to be very difficult to treat me.

We were pleased to learn the results of the skeletal survey that showed no lesions had formed in my bones. However, a bone density needs to be done next which will show if my bones have become osteopenic, a precursor to osteoporosis. This can happen from the cancer and/or from all the high dose steroids. When my bones reach this point, high dose bisphosphonates will be administered by IV once a month.

Thank you for your phone calls, emails and cards. It really lifts our spirits to be reminded that we are not alone in this battle and that your thoughts and prayers continue to be with us.